Girl With Extremely Rare 'Uncombable Hair Syndrome' Rocks Her Unique Look

Girl With Extremely Rare 'Uncombable Hair Syndrome' Rocks Her Unique Look

Shilah Madison is one of 100 documented cases of UHS around the world.

Shilah Madison is rocking her unique hair and inspiring others to do the same. The youngster has a rare genetic condition known as Uncombable Hair Syndrome. Instead of growing downward, people with UHS have hair that grows out in multiple directions. Like its name suggests it's not easy to comb. Whenever someone looks or seems "different" people do not know how to react. Some people can be cruel and even offer rude comments. But Shilah has embraced her hair as part of her identity and has an Instagram page to inspire other children who were born with the syndrome.


The 10-year-old's family posted a Shilah on her Instagram page, writing: Why do others always feel the need to tear others down??? Shilah is a beautiful, confident and one of a kind young lady. It’s through sharing her ups and downs and meeting people world wide who also have this condition that she now feels connected. It’s not about fame in fact the opposite it was about giving her a platform where she was able to share and hopefully give other people around the world a little piece of her spark that would give them the confidence to embrace what makes them unique and special. People can say what they want we don’t mind but what we teach our children is to respect others and never judge just because you don’t understand or it’s different. It’s okay to be you and we hope everyone can learn to accept themselves and one another.


Did you know that some people believe that Albert Einstein also had Uncombable Hair Syndrome? Currently, there are only about 100 documented cases of UHS around the world, according to Inside Edition. 4-year-old Taylor also has one-of-a-kind hair.  “It is very fragile, so what ends up happening is that we see a lot of breakage,” Taylor’s mom told the outlet. “We deal with matting all the time. It’s something we have to keep on top of. We have to brush her hair multiple times a day.” Speaking of mean things people say about her hair, her mom revealed, “We had people ask us if she stuck her finger in a light socket." Many kids grow out of this situation, Dr. Alanna Bree shared. “Around the puberty time, the hair seems to kind of seemingly become a little bit more manageable,” Bree said.



Another child with UHS is 9-year-old Lyla Grace Barlow from Derby who has had it since she was just a year old. “Lyla Grace’s hair started growing and her baby hair was just like fluff,” her mom, Alex Barlow, 32 told Yahoo Life. “I thought it was amazing but I had a feeling something was wrong." People said it was just baby hair but Alex knew it wasn’t normal. “We had a graph of different types of hair and we couldn’t find hers on there. It was just fluff, like candy floss.” Eight years later, now her hair is more manageable and can even be brushed and even plaited. “The condition does calm down as children hit puberty so, although it’s still there, it has tamed a lot,” she shared. Lyla Grace has grown to love her unique fluffy frizz. "She really embraces her hair and the kids at school love it. We've raised her to be proud of her hair and be happy with who she is. As long as she goes out with that attitude, she’ll be fine,” said Alex.